How To Get Involved
I partnered with 11 Health & Technologies in October of 2017. This patient-created company is leading the way in ostomy technology, and is an incredible resource for patients. Because the founder, Michael Seres, and a Crohn’s Disease and ostomy patient himself, he knows how important patient advocacy is. It is the center of their mission. I am fortunate enough to work as their Patient Champion Coordinator, working directly with patients trying out their ostomy technology. Not only is it a resource for patients, but it also is an employer of many people with chronic illness, which speaks highly of them!
If you are interested in research for Inflammatory Bowel Disease, Cure for IBD is a great foundation to get involved in. Created fairly recently by IBD patients and parents, it is a non-profit raising funds that go solely to research. 100% of everything raised goes to research, like the research being done at Children’s Hospital of Philadelphia. Cure for IBD team members participate in runs, walks, and other events all of the country sporting Cure for IBD gear to raise awareness. Please visit their website for more information on how to get involved!
Crohn’s and Colitis Foundation (previously Crohn’s and Colitis Foundation of America/CCFA)
This foundation has been around for many years and supports the lives of those suffering from IBD. They have much to offer patients, like Camp Oasis, an overnight camp for children with IBD to help kids feel “normal” one week out of the year! They also have fundraising events like Take Steps and Team Challenge. They work on research and education programs as well as patient advocacy, like IBD Day on the Hill. Below is a speech I gave at IBD Day on the Hill a few years ago. Please visit their website for more information!
United Ostomy Associations of America
This is a non-profit that improves the lives of those with either intestinal or urinary diversions. They have a magazine subscription available, called The Phoenix Magazine, that provides information about ostomies. Please see their website for more detailed information.