• Health Advocacy,  IBD,  Life,  Nursing

    How Inflammatory Bowel Disease Changed My Life

    I am sitting here typing this, sipping on ginger ale to ease the nausea, thinking back on how Crohn’s disease has affected my life. It certainly has had its negative effects (note the current fear of moving because I think it will make me throw up). But it has also had its positives. Isn’t it strange to say such an awful disease has done so much good in my life? When I was fifteen, my thoughts of the future included fashion design or early childhood education or home economics teaching or I don’t really know. I wasn’t sure where life would take me to be honest. I had many interests,…

  • Uncategorized

    I’m Your Nurse, We Have the Same Disease

    Many of my friends here online know I shout about my disease to the world. Very early on after ostomy surgery, the fear of what people thought of me subsided and I became very proud that I owned this bagged belly. I tell everyone… pretty much every friend, friend-of-a-friend, coworker, etc. knows I have this. It makes it much easier to explain the odd noises coming from my stomach this way. You may wonder how I handle working with children (and parents of these children) being diagnosed with the same disease I have lived with for over 13 years. I feel as though I have great advice to share, especially…

  • Ostomy Care

    He Sticks With Me Even When My Bag Doesn’t

    Here’s a cutsie story to prove love exists, even with a bag. I can’t even count how many times people have come to me, asking how someone could ever love them with a bag on their side. Ostomies and relationships are a common worry. Zak and I had been dating for maybe a couple of weeks the first time I slept over. We were still in that phase where we didn’t quite know where it was going, but we enjoyed each other’s company and spent as much time as possible together. He knew about my ostomy and I was very open with it. I never felt shy telling someone I…

  • Uncategorized

    My Story with Crohn’s Disease

    My story with Crohn’s Disease may be a familiar one to you – whether you’ve suffered hours alone in the bathroom or spent many a night in a hospital room. I share my story to give hope to those currently struggling, unable to see a light at the end of the tunnel. I was about eight years old when the symptoms started sneaking in. A little bit longer in the bathroom, loss of appetite, and a dip on the growth curve. Pediatrician visits left us with recommendations of drinking more milk. A little bit longer in the bathroom turned into hours spent there. Drinking more milk left us with more…